World Public Library

The Skool of No Fun and No Play : Adventures in Osteogenesis Imperfecta

Dr. Ms. Brenda Cleary, Argerie Tsimicalis, Editor

Abstract

This children’s story was collaboratively written with patients affected by osteogenesis imperfecta (OI), a bone disease known for causing deformity and elevated fracture risk, at the Shriners Hospitals for Children® – Canada. Children were invited to invent a story wherein a “bad” school transforms into a “good” school, thereby revealing the complex values and preferences these children hold. We believe that by understanding the perspectives of children our communities can better serve them.

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